My Recipe for Portacath Pillows (2024)

2/03/2016 – Update:

So this is crazy! I have been getting so many views of this post coming over from Pinterest! Thank you for coming by and for all the good you are doing for your friends, family, strangers – or maybe even for yourself. Hugs all around!

With so much traffic to this blog post, I’ve decided to update a couple of things – some thanks to the suggestions of readers. So – anything you see in thiscolor is an addition or change to the original post.

And just so you know – I had a CT scan recently and there was no visible sign of cancer. I’ll be celebrating my 2nd birthday (stem cell transplant anniversary) on 2/12.

Enough hair for a little trim!

I’ve been neglecting this space again! Jana Last even included my last post – Mom’s recipe for Blender Custard Pie – in her Fab Finds. A week ago! I didn’t realize it until today.

I usually post family recipes on Friday, but today will be a different kind of recipe. Not really a recipe – I’m fudgingcheating. It’s a pattern.

If you are a frequent visitor, you know that I had a stem cell transplant on February 12th – my new birthday. That makes me 7 months old today!

On August 12, my six month new birthday, I celebrated by taking snacks and portacath pillows to the infusion (chemo) room where I received six rounds of chemo from Sept.- Dec.

On my first day of chemo I was scared and apprehensive. A friend texted me after a couple of hours and asked how it was going.

My answer to her: It is strangely pleasant here.

Cancer free! 12/13

And it was. My nurse, Emily, took such good care of me, patiently explaining everything and making sure that I was comfortable. The woman across from me had a friend with her and they were playing cards and laughing. They wanted a picture taken with Emily, so I suggested my husband take it. 🙂 There was a volunteer in the room who came around every so often and offered to get water, coffee, or a snack for my husband and me. It was so nice to be looked out for in that way.

Hours spent in the chemo room were mostly pleasant and I always had wonderful nurses and the best of care. But there was never a volunteer with snacks on any of the other days. 🙁

Now that I am able to be on the giving side of cancer, I decided that, once I felt up to it, I would spend some time in the infusion room and try to return just a bit of the goodness that I had received there. I’m not up for doing this on a regular basis, but I decided that I could do something once a month to celebrate on the anniversaries of my transplant.

Now let me tell you about those pillows, as they are the main point of this post….

In the infusion room, there was a basket that held hats that had been sewn or knitted or crocheted by volunteers and were free for the taking. Friends who had been cancer patients told me to look for the basket and to find a hat to wear to bed because my head would get cold at night. (They were right!) I found a hat I sort of liked …. (I’m not much for turban-style pink hats that scream CANCER), but it was just the right weight – not too heavy and thick – a nice, soft fabric for a sleeping cap.

my pillow

The other thing I found in the basket – and there was only one – was a portacath pillow. There was a note with it saying that it had been made by a woman in her 80s who is a cancer survivor and her daughter is a cancer survivor. It even had her address so I could send her a note of thanks. 🙂

Many cancer patients have a power port or a portacath “installed” under the skin a couple of inches below the collar bone. You know – right where a seat belt will fit perfectly over it, pressing firmly to make it just a bit uncomfortable. This great little pillow attaches to your seatbelt and holds it off of your port. I prefer to have the pillow higher than my port as I find that if it is right over the port it still puts pressure on it.

I used the pillow I took from the basket as my pattern and made 31 for the infusion room last month. There were none in the basket today. Time to make more! I’m sharing my directions with you, in case you would like to join me.

A friend helped me pick out the gold fabric off the discount table at the fabric store, noting that is is gender neutral. What smart friends I have! I made some from denim I had on hand, but they take longer to make because of the little bit of hand sewing. It’s dense and hard to poke a needle through, so I don’t recommend denim or old jeans unless you are only making one or two or have special denim super powers. Just plain old odds and ends of poly/cotton or cotton or muslin will work fine. (At first I hesitated to suggest fleece because I was afraid it might cause a little shock from static electricity during cold weather. I tried one out a couple of times and didn’t have a problem, so I think it’s ok after all. Fleece sews up easily too.)Feel free to alter as you like. The pillow I have is just a little bigger than the ones I made.

What you need:
Enough fabric for two 7-x-4-inch rectangles.
Velcro – the sew-on kind, not with sticky backing. I used 5/8-inch width.
Fiber fill stuffing
thread

A word about velcro. One time I picked up several packages of velcro in a variety of colors and thought it wasso great to have more color options. But – the velcro backing was very stiff and I didn’t really like it. I evencut rounded corners because I didn’t want it poking people. I don’t have a package to tell you a brand, but I bought it at Hobby Lobby. Last time I bought velcro I saw that some arelabeled by how stiff or flexible they are.

Cut two 7-x-4-inch pieces of fabric.

Cut Velcro to 4-inch strip. (It has been suggested that a 3.5 inch strip is so much easier to sew. Duh!! And it should not cause a problem with snagging clothes because the little bit of velcro that will be exposed will be facing AWAY from clothes – not toward them.)Machine baste one side of Velcro to right side of fabric – fuzzy/loopy side up. Stitch only one end of Velcro, leaving the other end free.

Baste other half of Velcro strip to opposite side of fabric – loopy side down.
Put fabric pieces right sides together and make 1/4-inch seam all the way around, leaving an opening about 1 1/2 – 2 inches at one end. Be sure not to catch the “free” ends of the Velcro pieces in the seam.(See above. If you cut your pieces to 3.5, you won’t have to worry about catching the free end.)
Turn right side out and stuff.
Whip stitch opening to finish. Ta Da!

These are great to do assembly-line style, if you want to make more than one or two.

I look forward to celebrating many more 12ths of the month and practicing this small act of gratitude.

And if you are the praying kind, join me today in offering a prayer of thanks for doctors, nurses, researchers and modern medicine, and for those receiving treatment today and those caring for them.

My Recipe for Portacath Pillows (2024)

FAQs

How to make chemo port pillows? ›

How to make a port pillow
  1. Materials. Cotton fabric (or any desired fabric) Sew-on Velcro (5⁄8-inch width) ...
  2. Directions. Cut two pieces of fabric into rectangles that measure 7 x 4 inches. Cut one piece of Velcro that measures 3½ inches. ...
  3. Personalize your port pillow. • Put your name on it. • Use your favorite pattern or fabric.
Apr 22, 2018

What size are port pillows? ›

What is this? For the advanced sewers out there, you'll take one look at the chemo port pillow and stop reading the tutorial because it's a 7″ x 4″ rectangle with sew-on hook-and-loop tape and polyester fill.

What is a portacath pillow? ›

Chemotherapy port pillows are distributed to patients who are going through chemotherapy treatment and have a portacath placed beneath their skin. The pillow attaches to a seat belt to provide cushion between the port and the seat belt, making car rides more comfortable for patients.

How do I make my chemo port comfortable? ›

People can take several steps to make sleeping more comfortable while the skin around their chemo port heals.
  1. Change sleep position. ...
  2. Wear comfortable clothing. ...
  3. Consider a new mattress. ...
  4. Switch to more supportive pillows.
Jul 16, 2021

What are the four common pillow sizes? ›

Pillow Sizes and Dimensions
Pillow SizeWidthLength
Standard20 inches26 inches
Queen20 inches30 inches
King20 inches36 inches
Euro26 inches26 inches
Jan 6, 2023

What size pillows do they make? ›

Bed Pillow Sizes Chart
Pillow SizeMeasurements (Inches)Measurements (CM)
Standard20 inches by 26 inches51 CM by 56 CM
Queen20 inches by 30 inches51 CM by 76 CM
King20 inches by 36 inches51 CM by 92 CM
Body20 inches by 54 inches51 CM by 137 CM
Aug 16, 2024

What are good size pillows? ›

A standard pillow measures 50cm x 75cm - it's the pillow size most people have in their homes. A superking pillow measures 50cm x 90cm, making it ideal for wider beds such as superking and emperor size beds. A junior pillow measures 40cm x 60cm and has been designed for young children.

How should you sleep with a port? ›

Sleeping on your back is the best way to get a good night's sleep with a chemo port. This is usually the best sleep position because it prevents friction and pressure on the chemo port, thereby minimizing possible discomfort.

What are the disadvantages of a portacath? ›

Disadvantages of a Chemo Port

Risk of infection: While the risk is relatively low, it can occur. Research suggests that around 2% of chemo ports need to be replaced due to an infection. 2. Risk of thrombosis: Many people with a chemo port will develop a blood clot (thrombosis ) which can block the catheter.

How many times can a portacath be used? ›

Ports are traditionally placed in either the arm or chest. Arm ports are typically lower profile and smaller. Because of their smaller size, arm ports are usually good for approximately 1,000 punctures while chest ports roughly 2,000.

How do you make a chemo basket? ›

Create a chemotherapy care package
  1. Hypoallergenic, unscented hand lotion.
  2. Unscented hand sanitizer (chemotherapy can weaken the immune system, so hand sanitizer comes in handy)
  3. Tissue travel packs.
  4. Neck pillow.

What side should I sleep on with chemo port? ›

If your chemo port is on the right side of your chest, try sleeping on your left side — or vice versa. There's really no sleep position that's dangerous for someone with a chemo port. But you should avoid positions that could place unnecessary pressure on your port — like sleeping with your arms raised above your head.

What is in a chemo comfort bag? ›

Things to pack in your chemo bag
  • Books and magazines.
  • Cellphone.
  • Coloring book and markers, crayons or colored pencils.
  • Electronic chargers.
  • Hard candy.
  • Headphones.
  • Favorite blanket or pillow.
  • Lap table.
Feb 15, 2023

What can you not do with a chemo port? ›

Avoid arm and upper body movements that may pull on the incision for the first week. These movements include heavy weight lifting (no more than 4.5 kg or 10 lbs.) and vigorous use of your arms. Do not do exercises with your arms above your shoulders or behind your back for 1 week.

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